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EDITOR IN CHIEF- ABDULLAH BIN SALIM AL SHUEILI

Toddler beats rare illness after 3+ years in hospital

Abdulrahman was diagnosed with a rare neuromuscular disorder that affects communication between the nerves and muscles, resulting in persistent muscle weakness.
Abdulrahman was diagnosed with a rare neuromuscular disorder that affects communication between the nerves and muscles, resulting in persistent muscle weakness.
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MUSCAT: Ibra Referral Hospital in Al Sharqiyah North Governorate bid farewell to a three-and-a-half-year-old Abdulrahman, marking the end of a challenging medical journey that lasted more than 1,200 days.


Abdulrahman was diagnosed with congenital myasthenic syndrome (CMS), a rare neuromuscular disorder that affects communication between the nerves and muscles, resulting in persistent muscle weakness that can worsen with physical exertion. In severe cases, the condition may affect movement and breathing.


After more than 1,200 days under the care of Ibra Reference Hospital, Abdulrahman has now left the hospital in good health, bringing a remarkable chapter in his medical journey to a hopeful conclusion.


Dr Raya bint Rashid al Habsi, Senior Consultant Paediatrician at Ibra Hospital, said the child’s condition required accurate diagnosis, specialised treatment and continuous medical monitoring.


She noted that the medical, nursing and technical teams at the hospital worked closely to establish an accurate diagnosis and develop an appropriate treatment plan, supported by the necessary supportive therapies throughout his prolonged hospital stay.


“The successful management of Abdulrahman’s condition reflects the importance of multidisciplinary teamwork in dealing with rare and complex medical cases,” Dr Al Habsi said.


The child’s recovery and eventual discharge in good health also highlights the hospital’s capacity to provide comprehensive care for patients requiring prolonged treatment and close follow-up.


Dr Ahmed bin Mohammed al Jabri, Director of Ibra Hospital and Senior Consultant in Emergency Medicine, said Abdulrahman’s treatment journey was marked by several complex health challenges associated with the nature of his condition.


He explained that the provision of specialised medical care across different disciplines, together with an intensive treatment programme and continuous follow-up, played a key role in the child’s recovery.


“Abdulrahman’s case was a long and challenging journey, but the coordinated efforts of the medical and support teams helped him overcome the difficulties and regain his health,” Dr Al Jabri said.


The successful conclusion of the child’s treatment journey reflects the efforts of healthcare professionals in managing rare and complex conditions and highlights the importance of integrated, patient-centred care in achieving positive health outcomes.


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